As most of you know, my immune system does not function at full capacity and can cause a variety of interesting issues. While I have been fairly healthy over the last 14 years of living with CVID, in the past year I have struggled with GI problems that have lead me to some significant weight loss. As I began approaching my fabulous physicians, there was a general consensus that GI problems were just part of the natural progression of CVID. My best-friend in Montana, Colleen, found a research study at the National Institute of Health (NIH) in Bethesda MD that is looking at GI abnormalities in people with CVID. This study is with the most knowledgable experts in the field of CVID, so Colleen and I traveled to Bethesda for the initial screening process.
Colleen was able to get tickets for a White House tour through her congressman, Ben Nelson denied me as I didn't ask 4 months in advance. We were really excited, even though the tour started at 7:30am and we had to pay for a taxi because the metros don't run that early on Saturday, we were convinced we would be at least seeing the first dog, Bo. Sadly, the tour was very disappointing, we were only allowed to see a few select rooms that were roped off and it was self-guided tour. It was frustrating to go to a lot of effort for such a ridiculous tour. But, on Monday when we finished at the NIH we went back to the White House to see Michelle's garden and we saw BO! Look closely at the pictures to see the adult person with BO..
